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MICH-28.2 Data Details

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MICH-28.2 Reduce the occurrence of anencephaly

About the Data

Description of the data source, numerator, denominator, survey questions, and other relevant details about the national estimate.

Data Source: 
National Birth Defects Prevention Network (NBDPN); Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities (CDC/NCBDDD)
National Vital Statistics System-Natality (NVSS-N); Centers for Disease Control and Prevention, National Center for Health Statistics (CDC/NCHS)
Changed Since the Healthy People 2020 Launch: 
Yes
Measure: 
per 100,000 live births
Baseline (Year): 
24.6 (2005–06)
Target: 
22.1
Target-Setting Method: 
10 percent improvement
Numerator: 

Cases of anencephaly

Denominator: 

Number of live births

Comparable Healthy People 2010 Objective: 
Not applicable
Data Collection Frequency: 
Biennial
Methodology Notes: 

    CDC's National Center for Birth Defects and Developmental Disabilities (NCBDDD) is collaborating with states in the National Birth Defects Prevention Network (NBDPN) to systematically collect population-based birth defects data on neural tube defects in a timely manner. Nine state birth defects surveillance programs that can collect anencephaly cases for all pregnancy outcomes were included in the dataset. Anencephaly cases are identified using either ICD-9 (741.0, 741.9) or CDC/BPA (741.00 – 741.99) codes.

Revision History

Any change to the objective text, baseline, target, target-setting method or data source since the Healthy People 2020 launch.

Description of Changes Since the Healthy People 2020 Launch: 
In 2013, the words “live births and/or fetal deaths” were replaced with “cases” and the phrase “were diagnosed”' was removed from the data label to reflect the data collected in the surveillance instrument. Data for anencephaly from any pregnancy outcome were aggregated from multiple population-based surveillance systems across the U.S. Some of these cases might have resulted in a termination. Additionally, the cases were occurrences and may not have necessarily been diagnosed in the base line or target year.