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MICH-26 Data Details

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MICH-26 Reduce the proportion of children diagnosed with a disorder through newborn bloodspot screening who experience developmental delay requiring special education services

About the Data

Description of the data source, numerator, denominator, survey questions, and other relevant details about the national estimate.

Data Source: 
Metropolitan Atlanta Developmental Disabilities Surveillance Program (MADDSP); Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities (CDC/NCBDDD)
Changed Since the Healthy People 2020 Launch: 
No
Measure: 
percent
Baseline (Year): 
15.1 (1988–96)
Target: 
13.6
Target-Setting Method: 
10 percent improvement
Numerator: 

Number of 3-10 year-old children diagnosed with a disorder through newborn bloodspot screening who experience developmental delay requiring special education services

Denominator: 

Number of 3-10 year-old children diagnosed with a disorder through newborn bloodspot screening

Comparable Healthy People 2010 Objective: 
Not applicable
Data Collection Frequency: 
Periodic
Methodology Notes: 

    The Autism and Developmental Disabilities Monitoring Network (ADDM) provides reliable, population-based prevalence estimates of the number of school-aged children with developmental disabilities over time and is the only program in the US conducting active surveillance for serious developmental disabilities using data on individual children. ADDM sites with access to both education records and newborn blood-spot screening data will contribute to these data points. Data from newborn bloodspot screening will be used to establish the denominator and these data will be linked to special education data obtained annually by each ADDM site with access to education records.

References

Additional resources about the objective

  1. Powell KK, Van Naarden Braun K, Singh RH, Shapira SK, Olney RS, Yeargin-Allsopp M. Long-term speech and language developmental issues among children with Duarte galactosemia. Genetics Med. 2009; (12):874-9.
  2. Powell, K. K., Van Naarden Braun, K., Singh, R. H., Shapira, S. K., Olney, R. S., Yeargin-Allsopp, M. Prevalence of developmental disabilities and receipt of special education services among children with an inborn error of metabolism. J of Pediatrics 2010 156:420-426.