MICH-26 Reduce the proportion of children diagnosed with a disorder through newborn blood spot screening who experience developmental delay requiring special education services
About the Data
Description of the data source, numerator, denominator, survey questions, and other relevant details about the national estimate.
Number of 3-10 year-old children diagnosed with a disorder through newborn bloodspot screening who experience developmental delay requiring special education services
Number of 3-10 year-old children diagnosed with a disorder through newborn bloodspot screening
The Autism and Developmental Disabilities Monitoring Network (ADDM) provides reliable, population-based prevalence estimates of the number of school-aged children with developmental disabilities over time and is the only program in the US conducting active surveillance for serious developmental disabilities using data on individual children. ADDM sites with access to both education records and newborn blood-spot screening data will contribute to these data points. Data from newborn bloodspot screening will be used to establish the denominator and these data will be linked to special education data obtained annually by each ADDM site with access to education records.
Additional resources about the objective
- Powell KK, Van Naarden Braun K, Singh RH, Shapira SK, Olney RS, Yeargin-Allsopp M. Long-term speech and language developmental issues among children with Duarte galactosemia. Genetics Med. 2009; (12):874-9.
- Powell, K. K., Van Naarden Braun, K., Singh, R. H., Shapira, S. K., Olney, R. S., Yeargin-Allsopp, M. Prevalence of developmental disabilities and receipt of special education services among children with an inborn error of metabolism. J of Pediatrics 2010 156:420-426.