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Home » 2020 Topics & Objectives » Genomics » G-1 Data Details

G-1 Data Details

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G-1 Increase the proportion of women with a family history of breast and/or ovarian cancer who receive genetic counseling

About the Data

Description of the data source, numerator, denominator, survey questions, and other relevant details about the national estimate.

Data Source: 
National Health Interview Survey
Changed Since the Healthy People 2020 Launch: 
Yes
Measure: 
percent (age adjusted—see Comments)
Baseline (Year): 
34.6 (2005)
Target: 
38.1
Target-Setting Method: 
10 percent improvement
Numerator: 

Number of women aged 18 years and older who have ever discussed the possibility of getting a genetic test for cancer risk with a Health Care provider, who met the USPSTF criteria, based on first-degree relatives only, for BRCA1/2 genetic counseling referral, and who do not have a personal history of breast or ovarian cancer

Denominator: 

Number of women aged 18 years and older who met the USPSTF criteria, based on first-degree relatives only, for BRCA1/2 genetic counseling referral, and who do not have a personal history of breast or ovarian cancer

Comparable Healthy People 2010 Objective: 
Not applicable
Questions Used to Obtain the National Baseline Data: 

    [NUMERATOR:]

    Have you EVER DISCUSSED the possibility of getting a genetic test for cancer risk with a doctor or other health professional?

    1. Yes
    2. No
    3. Refused
    4. Don't know

    [NUMERATOR AND DENOMINATOR:]

    What kind of cancer did your father have?

    1. Bladder
    2. Blood
    3. Bone
    4. Brain
    5. Breast
    6. Cervix
    7. Colon
    8. Esophagus
    9. Gallbladder
    10. Kidney
    11. Larynx-windpipe
    12. Leukemia
    13. Liver
    14. Lung
    15. Lymphoma
    16. Melanoma
    17. Mouth/tongue/lip
    18. Ovary
    19. Pancreas
    20. Prostate
    21. Rectum
    22. Skin (non melanoma)
    23. Skin (DK what kind)
    24. Soft tissue (muscle or fat)
    25. Stomach
    26. Testis
    27. Throat-pharynx
    28. Thyroid
    29. Uterus
    30. Other
    31. Refused
    32. Don't know

    What kind of cancer did your mother have?

    1. Bladder
    2. Blood
    3. Bone
    4. Brain
    5. Breast
    6. Cervix
    7. Colon
    8. Esophagus
    9. Gallbladder
    10. Kidney
    11. Larynx-windpipe
    12. Leukemia
    13. Liver
    14. Lung
    15. Lymphoma
    16. Melanoma
    17. Mouth/tongue/lip
    18. Ovary
    19. Pancreas
    20. Prostate
    21. Rectum
    22. Skin (non melanoma)
    23. Skin (DK what kind)
    24. Soft tissue (muscle or fat)
    25. Stomach
    26. Testis
    27. Throat-pharynx
    28. Thyroid
    29. Uterus
    30. Other
    31. Refused
    32. Don't know

    Was your biological mother under 50 years of age when [cancer type] was first diagnosed?

    1. Yes
    2. No
    3. Refused
    4. Don't know

    What kinds of cancer did your brother/brothers have?

    1. Bladder
    2. Blood
    3. Bone
    4. Brain
    5. Breast
    6. Cervix
    7. Colon
    8. Esophagus
    9. Gallbladder
    10. Kidney
    11. Larynx-windpipe
    12. Leukemia
    13. Liver
    14. Lung
    15. Lymphoma
    16. Melanoma
    17. Mouth/tongue/lip
    18. Ovary
    19. Pancreas
    20. Prostate
    21. Rectum
    22. Skin (non melanoma)
    23. Skin (DK what kind)
    24. Soft tissue (muscle or fat)
    25. Stomach
    26. Testis
    27. Throat-pharynx
    28. Thyroid
    29. Uterus
    30. Other
    31. Refused
    32. Don't know

    What kind of cancer did your sister/sisters have?

    1. Bladder
    2. Blood
    3. Bone
    4. Brain
    5. Breast
    6. Cervix
    7. Colon
    8. Esophagus
    9. Gallbladder
    10. Kidney
    11. Larynx-windpipe
    12. Leukemia
    13. Liver
    14. Lung
    15. Lymphoma
    16. Melanoma
    17. Mouth/tongue/lip
    18. Ovary
    19. Pancreas
    20. Prostate
    21. Rectum
    22. Skin (non melanoma)
    23. Skin (DK what kind)
    24. Soft tissue (muscle or fat)
    25. Stomach
    26. Testis
    27. Throat-pharynx
    28. Thyroid
    29. Uterus
    30. Other
    31. Refused
    32. Don't know

    Was your sister under 50 years of age when [cancer type] was first diagnosed?

    1. No
    2. Yes
    3. Refused
    4. Don't know

    How many of these sisters were under 50 years of age when [cancer type] was first diagnosed?

    1. None
    2. 1
    3. 2
    4. 3
    5. 4
    6. 5
    7. 6
    8. 7
    9. 8
    10. 9
    11. 10
    12. 11
    13. 12
    14. 13
    15. 14
    16. 15
    17. 16
    18. 17
    19. 18
    20. 19
    21. 20
    22. 21+
    23. Refused
    24. Don't know

    What kinds of cancer did your son/sons have?

    1. Bladder
    2. Blood
    3. Bone
    4. Brain
    5. Breast
    6. Cervix
    7. Colon
    8. Esophagus
    9. Gallbladder
    10. Kidney
    11. Larynx-windpipe
    12. Leukemia
    13. Liver
    14. Lung
    15. Lymphoma
    16. Melanoma
    17. Mouth/tongue/lip
    18. Ovary
    19. Pancreas
    20. Prostate
    21. Rectum
    22. Skin (non melanoma)
    23. Skin (DK what kind)
    24. Soft tissue (muscle or fat)
    25. Stomach
    26. Testis
    27. Throat-pharynx
    28. Thyroid
    29. Uterus
    30. Other
    31. Refused
    32. Don't know

    What kinds of cancer did your daughter/daughters have?

    1. Bladder
    2. Blood
    3. Bone
    4. Brain
    5. Breast
    6. Cervix
    7. Colon
    8. Esophagus
    9. Gallbladder
    10. Kidney
    11. Larynx-windpipe
    12. Leukemia
    13. Liver
    14. Lung
    15. Lymphoma
    16. Melanoma
    17. Mouth/tongue/lip
    18. Ovary
    19. Pancreas
    20. Prostate
    21. Rectum
    22. Skin (non melanoma)
    23. Skin (DK what kind)
    24. Soft tissue (muscle or fat)
    25. Stomach
    26. Testis
    27. Throat-pharynx
    28. Thyroid
    29. Uterus
    30. Other
    31. Refused
    32. Don't know

    Was your daughter under 50 years of age when [cancer type] was first diagnosed?

    1. No
    2. Yes
    3. Refused
    4. Don't know

    How many of these daughters were under 50 years of age when [cancer type] was first diagnosed?

    1. None
    2. 1
    3. 2
    4. 3
    5. 4
    6. 5
    7. 6
    8. 7
    9. 8
    10. 9
    11. 10
    12. 11
    13. 12
    14. 13
    15. 14
    16. 15
    17. 16
    18. 17
    19. 18
    20. 19
    21. 20
    22. 21+
    23. Refused
    24. Don't know
Data Collection Frequency: 
Periodic
Methodology Notes: 

    The United States Preventive Services Task Force (USPSTF) issued an evidence-based statement in 2005 recommending that women whose family history is associated with an increased risk for deleterious mutations in BRCA1 or BRCA2 genes be referred for genetic counseling and evaluation for BRCA testing. Specific family history patterns identified by the USPSTF as associated with an increased risk for deleterious mutations in the BRCA1 and BRCA2 genes in non-Ashkenazi Jewish women include:
    2 first-degree relatives with breast cancer, 1 of whom received the diagnosis at age 50 years or younger;
    a combination of 3 or more first- or second-degree relatives with breast cancer regardless of age at diagnosis;
    a combination of both breast and ovarian cancer among first- and second-degree relatives;
    a first-degree relative with bilateral breast cancer;
    a combination of 2 or more first- or second-degree relatives with ovarian cancer regardless of age at diagnosis;
    a first- or second-degree relative with both breast and ovarian cancer at any age; and
    a history of breast cancer in a male relative.

    NHIS does not ascertain:
    1) Ashkenazi Jewish ancestry: analyses assume non-Ashkenazi Jewish ancestry;
    2) cancer history for second-degree relatives: only first-degree relatives are included in the analyses; and
    3) bilateral breast cancer: this USPSTF increased risk family history category is excluded from the analyses.

    Age Adjustment Notes: 

    This Indicator uses Age-Adjustment Groups:

    • Total: 18-44, 45-64, 65+
    • Race/Ethnicity: 18-44, 45-64, 65+
    • Educational Attainment: 25-44, 45-64, 65+
    • Family Income (percent poverty threshold): 18-44, 45-64, 65+
    • Family Type: 18-44, 45-64, 65+
    • Country of Birth: 18-44, 45-64, 65+
    • Disability Status: 18-44, 45-64, 65+
    • Geographic Location: 18-44, 45-64, 65+
    • Health Insurance Status: 18-44, 45-64
    • Marital Status: 18-44, 45-64, 65+

Revision History

Any change to the objective text, baseline, target, target-setting method or data source since the Healthy People 2020 launch.

Description of Changes Since the Healthy People 2020 Launch: 
In 2013, the original baseline was revised from 23.3 to 34.6 due to a change in methodology that affects how missing and unknown survey responses are handled. The target was adjusted from 25.6 to 38.1 to reflect the revised baseline using the original target-setting method.

References

Additional resources about the objective

  1. U.S. Preventive Services Task Force. Genetic risk assessment and BRCA mutation testing for breast and ovarian cancer susceptibility: Recommendation statement. Ann Intern Med 2004;143:355-36
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