United States Renal Data System
The United States Renal Data System (USRDS) is a national data system that collects, analyzes, and distributes information about end-stage renal disease (ESRD) in the U.S. USRDS staff collaborate with staff from the Centers for Medicare & Medicaid Services (CMS), the United Network for Organ Sharing, and the ESRD networks, sharing data sets and actively working to improve the accuracy of ESRD patient information. USRDS has five goals: (1) to characterize the ESRD population; (2) to describe the prevalence and incidence of ESRD, along with trends in mortality and disease rates; (3) to investigate relationships among patient demographics, treatment modalities, and morbidity; (4) to identify new areas for special renal studies and support investigator-initiated research; and (5) to provide data sets and samples of national data to support research studies by the Special Studies Center.
Data for the USRDS database are compiled from existing data sources including the Centers for Medicare and Medicaid Services (CMS) Renal Management Information System (REMIS), CMS claims data, facility survey data, CDC survey data (NHANES), Standard Information Management System (SIMS), Medicare Evidence form (CMS-2728), ESRD Death Notification form (CMS-2746), and United Network for Organ Sharing (UNOS) transplant and wait-list data. The CMS data files are supplemented by CMS with enrollment, payer history, and other administrative data, to provide utilization and demographic information on ESRD patients.
Response or coverage rates are 100% of people treated for ESRD since 1995. Ascertainment of incident cases may be incomplete because the data are for persons receiving ESRD treatment and do not include patients who die of ESRD before receiving treatment and those who are not reported to CMS.
National Center for Health Statistics. Health United States 2009: With Special Feature on Medical Technology. Hyattsville, Maryland. 2010; pp 488-489.