National Survey of Children with Special Health Care Needs
The primary goal of the National Survey of Children with Special Health Care Needs (NS-CSHCN) is to assess the prevalence and impact of special health care needs among children under age 18 years in all 50 states and the District of Columbia. The survey explores the extent to which these children have medical homes, adequate health insurance and access to needed services. Other topics include functional difficulties, care coordination, satisfaction with care, and transition services.
NS-CSHCN is a component of the State and Local Area Integrated Telephone Survey (SLAITS). SLAITS is a broad-based, ongoing surveillance system that collects health data at the state and local levels. SLAITS surveys use the sampling frame of the National Immunization Survey (NIS) and immediately follow the NIS in selected households, using its sampling for efficiency and economy. For the 2005-06 survey, more than 3,000 households with children were screened to identify 750 children with special health care needs in each state and the District of Columbia. A national referent sample of approximately 5,000 children without special health care needs was identified, so that characteristics of children with special health care needs may be compared with characteristics of those without such needs. The survey respondent was a parent or guardian who knew about the child's health and health care.
For the 2005-06 survey, 40,840 special needs interviews were completed for children with special health care needs in the main sample; 6,113 interviews were completed for children without special health care needs in the referent sample.
https://www.cdc.gov/nchs/slaits/cshcn.htm and related web pages.