G-1 Increase the proportion of women with a family history of breast and/or ovarian cancer who receive genetic counseling

National Data Source
National Health Interview Survey (NHIS); Centers for Disease Control and Prevention, National Center for Health Statistics (CDC/NCHS)
Changed Since the Healthy People 2020 Launch
Yes
Measure
percent (age adjusted—see Comments)
Baseline (Year)
34.6 (2005)
Target
38.1
Target-Setting Method
10 percent improvement
Numerator
Number of women aged 18 years and older who have ever discussed the possibility of getting a genetic test for cancer risk with a Health Care provider, who met the USPSTF criteria, based on first-degree relatives only, for BRCA1/2 genetic counseling referral, and who do not have a personal history of breast or ovarian cancer
Denominator
Number of women aged 18 years and older who met the USPSTF criteria, based on first-degree relatives only, for BRCA1/2 genetic counseling referral, and who do not have a personal history of breast or ovarian cancer
Questions Used to Obtain the National Baseline Data

[NUMERATOR:]

Have you EVER DISCUSSED the possibility of getting a genetic test for cancer risk with a doctor or other health professional?

  1. Yes
  2. No
  3. Refused
  4. Don't know

[NUMERATOR AND DENOMINATOR:]

What kind of cancer did your father have?

  1. Bladder
  2. Blood
  3. Bone
  4. Brain
  5. Breast
  6. Cervix
  7. Colon
  8. Esophagus
  9. Gallbladder
  10. Kidney
  11. Larynx-windpipe
  12. Leukemia
  13. Liver
  14. Lung
  15. Lymphoma
  16. Melanoma
  17. Mouth/tongue/lip
  18. Ovary
  19. Pancreas
  20. Prostate
  21. Rectum
  22. Skin (non melanoma)
  23. Skin (DK what kind)
  24. Soft tissue (muscle or fat)
  25. Stomach
  26. Testis
  27. Throat-pharynx
  28. Thyroid
  29. Uterus
  30. Other
  31. Refused
  32. Don't know

What kind of cancer did your mother have?

  1. Bladder
  2. Blood
  3. Bone
  4. Brain
  5. Breast
  6. Cervix
  7. Colon
  8. Esophagus
  9. Gallbladder
  10. Kidney
  11. Larynx-windpipe
  12. Leukemia
  13. Liver
  14. Lung
  15. Lymphoma
  16. Melanoma
  17. Mouth/tongue/lip
  18. Ovary
  19. Pancreas
  20. Prostate
  21. Rectum
  22. Skin (non melanoma)
  23. Skin (DK what kind)
  24. Soft tissue (muscle or fat)
  25. Stomach
  26. Testis
  27. Throat-pharynx
  28. Thyroid
  29. Uterus
  30. Other
  31. Refused
  32. Don't know

Was your biological mother under 50 years of age when [cancer type] was first diagnosed?

  1. Yes
  2. No
  3. Refused
  4. Don't know

What kinds of cancer did your brother/brothers have?

  1. Bladder
  2. Blood
  3. Bone
  4. Brain
  5. Breast
  6. Cervix
  7. Colon
  8. Esophagus
  9. Gallbladder
  10. Kidney
  11. Larynx-windpipe
  12. Leukemia
  13. Liver
  14. Lung
  15. Lymphoma
  16. Melanoma
  17. Mouth/tongue/lip
  18. Ovary
  19. Pancreas
  20. Prostate
  21. Rectum
  22. Skin (non melanoma)
  23. Skin (DK what kind)
  24. Soft tissue (muscle or fat)
  25. Stomach
  26. Testis
  27. Throat-pharynx
  28. Thyroid
  29. Uterus
  30. Other
  31. Refused
  32. Don't know

What kind of cancer did your sister/sisters have?

  1. Bladder
  2. Blood
  3. Bone
  4. Brain
  5. Breast
  6. Cervix
  7. Colon
  8. Esophagus
  9. Gallbladder
  10. Kidney
  11. Larynx-windpipe
  12. Leukemia
  13. Liver
  14. Lung
  15. Lymphoma
  16. Melanoma
  17. Mouth/tongue/lip
  18. Ovary
  19. Pancreas
  20. Prostate
  21. Rectum
  22. Skin (non melanoma)
  23. Skin (DK what kind)
  24. Soft tissue (muscle or fat)
  25. Stomach
  26. Testis
  27. Throat-pharynx
  28. Thyroid
  29. Uterus
  30. Other
  31. Refused
  32. Don't know

Was your sister under 50 years of age when [cancer type] was first diagnosed?

  1. No
  2. Yes
  3. Refused
  4. Don't know

How many of these sisters were under 50 years of age when [cancer type] was first diagnosed?

  1. None
  2. 1
  3. 2
  4. 3
  5. 4
  6. 5
  7. 6
  8. 7
  9. 8
  10. 9
  11. 10
  12. 11
  13. 12
  14. 13
  15. 14
  16. 15
  17. 16
  18. 17
  19. 18
  20. 19
  21. 20
  22. 21+
  23. Refused
  24. Don't know

What kinds of cancer did your son/sons have?

  1. Bladder
  2. Blood
  3. Bone
  4. Brain
  5. Breast
  6. Cervix
  7. Colon
  8. Esophagus
  9. Gallbladder
  10. Kidney
  11. Larynx-windpipe
  12. Leukemia
  13. Liver
  14. Lung
  15. Lymphoma
  16. Melanoma
  17. Mouth/tongue/lip
  18. Ovary
  19. Pancreas
  20. Prostate
  21. Rectum
  22. Skin (non melanoma)
  23. Skin (DK what kind)
  24. Soft tissue (muscle or fat)
  25. Stomach
  26. Testis
  27. Throat-pharynx
  28. Thyroid
  29. Uterus
  30. Other
  31. Refused
  32. Don't know

What kinds of cancer did your daughter/daughters have?

  1. Bladder
  2. Blood
  3. Bone
  4. Brain
  5. Breast
  6. Cervix
  7. Colon
  8. Esophagus
  9. Gallbladder
  10. Kidney
  11. Larynx-windpipe
  12. Leukemia
  13. Liver
  14. Lung
  15. Lymphoma
  16. Melanoma
  17. Mouth/tongue/lip
  18. Ovary
  19. Pancreas
  20. Prostate
  21. Rectum
  22. Skin (non melanoma)
  23. Skin (DK what kind)
  24. Soft tissue (muscle or fat)
  25. Stomach
  26. Testis
  27. Throat-pharynx
  28. Thyroid
  29. Uterus
  30. Other
  31. Refused
  32. Don't know

Was your daughter under 50 years of age when [cancer type] was first diagnosed?

  1. No
  2. Yes
  3. Refused
  4. Don't know

How many of these daughters were under 50 years of age when [cancer type] was first diagnosed?

  1. None
  2. 1
  3. 2
  4. 3
  5. 4
  6. 5
  7. 6
  8. 7
  9. 8
  10. 9
  11. 10
  12. 11
  13. 12
  14. 13
  15. 14
  16. 15
  17. 16
  18. 17
  19. 18
  20. 19
  21. 20
  22. 21+
  23. Refused
  24. Don't know
Data Collection Frequency
Periodic
Comparable Healthy People 2010 Objective
Not applicable

Comments

Methodology Notes

The United States Preventive Services Task Force (USPSTF) issued an evidence-based statement in 2005 recommending that women whose family history is associated with an increased risk for deleterious mutations in BRCA1 or BRCA2 genes be referred for genetic counseling and evaluation for BRCA testing. Specific family history patterns identified by the USPSTF as associated with an increased risk for deleterious mutations in the BRCA1 and BRCA2 genes in non-Ashkenazi Jewish women include: 2 first-degree relatives with breast cancer, 1 of whom received the diagnosis at age 50 years or younger; a combination of 3 or more first- or second-degree relatives with breast cancer regardless of age at diagnosis; a combination of both breast and ovarian cancer among first- and second-degree relatives; a first-degree relative with bilateral breast cancer; a combination of 2 or more first- or second-degree relatives with ovarian cancer regardless of age at diagnosis; a first- or second-degree relative with both breast and ovarian cancer at any age; and a history of breast cancer in a male relative.

NHIS does not ascertain: 1) Ashkenazi Jewish ancestry: analyses assume non-Ashkenazi Jewish ancestry; 2) cancer history for second-degree relatives: only first-degree relatives are included in the analyses; and 3) bilateral breast cancer: this USPSTF increased risk family history category is excluded from the analyses.

Age Adjustment

This Indicator uses Age-Adjustment Groups:

  • Total: 18-44, 45-64, 65+
  • Race/Ethnicity: 18-44, 45-64, 65+
  • Educational Attainment: 25-44, 45-64, 65+
  • Family Income: 18-44, 45-64, 65+
  • Family Type: 18-44, 45-64, 65+
  • Country of Birth: 18-44, 45-64, 65+
  • Disability Status: 18-44, 45-64, 65+
  • Geographic Location: 18-44, 45-64, 65+
  • Health Insurance Status: 18-44, 45-64
  • Marital Status: 18-44, 45-64, 65+
Description of Changes Since the Healthy People 2020 Launch

The original baseline was revised from 23.3 to 34.6 due to a change in methodology that affects how missing and unknown survey responses are handled. The target was adjusted from 25.6 to 38.1 to reflect the revised baseline using the original target-setting method.

References and More Information

  1. U.S. Preventive Services Task Force. Genetic risk assessment and BRCA mutation testing for breast and ovarian cancer susceptibility: Recommendation statement. Ann Intern Med 2004;143:355-36