DH-5 Increase the proportion of youth with special health care needs whose health care provider has discussed transition planning from pediatric to adult health care

National Data Source
National Survey of Children with Special Health Care Needs (NS-CSHCN); Health Resources and Services Administration, Maternal and Child Health Bureau, and Centers for Disease Control and Prevention, National Center for Health Statistics (HRSA/MCHB and CDC/NCHS)
Changed Since the Healthy People 2020 Launch
No
Measure
percent 
Baseline (Year)
41.2 (2005-2006)
Target
45.3
Target-Setting Method
10 percent improvement
Numerator
Number of children with special Health Care needs, aged 12 to17 years, whose Health Care provider has discussed transition planning into adult care
Denominator
Number of children with special Health Care needs aged 12 to 17 years
Questions Used to Obtain the National Baseline Data

From the National Survey of Children with Special Health Care Needs (NS-CSHN), 2007/08 (Section 6B. TRANSITION ISSUES):

[NUMERATOR:]

The next questions are about preparing for his/her health care needs as he/she becomes an adult.

Do any of his/her doctors or other health care providers treat only children?

  • (1) Yes
  • (0) No
  • (6) Don't know
  • (7) Refused

Have they talked with you about having his/her eventually see doctors or other health care providers who treat adults?

  • (1) Yes
  • (0) No
  • (6) Don't know
  • (7) Refused

Would a discussion about doctors who treat adults have been helpful to you?

  • (1) Yes
  • (0) No
  • (6) Don't know
  • (7) Refused

Have his/her doctors or other health care providers talked with you or him/her about his/her health care needs as he/she becomes an adult?

  • (1) Yes
  • (0) No
  • (6) Don't know
  • (7) Refused

Would a discussion about his/her health care needs have been helpful?

  • (1) Yes
  • (0) No
  • (6) Don't know
  • (7) Refused

Eligibility for health insurance often changes as children reach adulthood. Has anyone discussed with you how to obtain or keep some type of health insurance coverage as he/she becomes an adult?

  • (1) Yes
  • (0) No
  • (6) Don't know
  • (7) Refused

How often do his/her doctors or other health care providers encourage him/her to take responsibility for his/her health care needs, such as (taking medication, understanding his/her health, or following medical advice)? Would you say?

  • (1) NEVER
  • (2) SOMETIMES
  • (3) USUALLY
  • (4) ALWAYS
  • (6) DON'T KNOW
  • (7) REFUSED

[denominator:]

Does your child currently need or use medicine prescribed by a doctor (other than vitamins)?

  • (1) Yes
  • (0) No
  • (6) Don't know
  • (7) Refused

Does your child need or use more medical care, metal health or educational services than is usual for most children of the same age?

  • (1) Yes
  • (0) No
  • (6) Don't know
  • (7) Refused

Is your child limited or prevented in any way in his or her ability to do things most children of the same age can do?

  • (1) Yes
  • (0) No
  • (6) Don't know
  • (7) Refused

Does your child need or get special therapy such as physical, occupational or speech therapy?

  • (1) Yes
  • (0) No
  • (6) Don't know
  • (7) Refused

Does your child have any kind of emotional, developmental, or behavioral problem for which he or she gets

  • (1) Yes
  • (0) No
  • (6) Don't know
  • (7) Refused
Data Collection Frequency
Biennial
Comparable Healthy People 2010 Objective
Not applicable

Comments

Methodology Notes

Youth with special Health Care needs are considered to have Health Care providers who have discussed transition planning into adult Health Care if they or an adult proxy respond “yes, always, usually or sometimes”, to any of the questions listed in the numerator section.

Youth with special Health Care needs are identified in this objective if they or an adult proxy respond “yes” to questions listed in the denominator section.

References and More Information

  1. Klein RJ, Proctor SE, Boudreault MA, Turczyn KM. Healthy People 2010 criteria for data suppression. Statistical Notes No. 24. Hyattsville (MD): National Center for Health Statistics. 2002. http://www.cdc.gov/nchs/data/statnt/statnt24.pdf
  2. National survey of children with special Health Care needs [Internet]. Portland (OR): Child and Adolescent Health Measurement Initiative (CAHMI). c2010 – [cited 2010, Mar 10.]. Available from http://cshcndata.org/content