BDBS-15 Increase the proportion of females with von Willebrand disease (vWD) who are timely and accurately diagnosed

National Data Source
Universal Data Collection System (UDC); Centers for Disease Control and Prevention, National Center for Birth Defects and Developmental Disabilities (CDC/NCBDDD)
Changed Since the Healthy People 2020 Launch
No
Measure
percent 
Baseline (Year)
28.4 (2008)
Target
31.2
Target-Setting Method
10 percent improvement
Numerator
Number of female patients with Von Willebrand (vWD) diagnosis, enrolled in UDC, who were diagnosed within one year after experiencing their first bleed
Denominator
Total number of female UDC enrollees with the diagnosis of Von Willebrand (VWD)
Data Collection Frequency
Annual
Comparable Healthy People 2010 Objective
Not applicable

Comments

Methodology Notes

Universal Data Collection (UDC) item 7 on the registration form if checked will constitute a diagnosis of Von Willebrand disease (VWD). The UDC data are collected from consenting patients who receive treatment for a bleeding disorder at any of about 130 federally funded Hemophilia Treatment centers (HTCs). Over 20,000 patients with bleeding disorders receive care at HTCs and around 85% of those who receive care at HTCs participate in UDC.

References and More Information

  1. Biron C, Mahieu B, Rochette A, Capdevila X, Castex A, Amiral J, D'Athis F, Schved JF. Preoperative screening for von Willebrand disease type 1: low yield and limited ability to predict bleeding. J Lab Clin Med 1999 Dec;134(6):605–609.
  2. James AH. Von Willebrand disease. Obstet Gynecol Surv. 2006 Feb;61(2):136-45.
  3. Werner EJ, Broxson EH, Tucker EL, Giroux DS, Shults J, Abshire TC. Prevalence of von Willebrand disease in children: a multiethnic study. J Pediatr 1993 Dec;123(6):893–898.