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DH-5 Data Details

DH-5 Increase the proportion of youth with special health care needs whose health care provider has discussed transition planning from pediatric to adult health care

About the Data

Description of the data source, numerator, denominator, survey questions, and other relevant details about the national estimate.

National Data Source
National Survey of Children with Special Health Care Needs (NS-CSHCN); Health Resources and Services Administration, Maternal and Child Health Bureau, and Centers for Disease Control and Prevention, National Center for Health Statistics (HRSA/MCHB and CDC/NCHS)
Changed Since the Healthy People 2020 Launch
No
Measure
percent 
Baseline (Year)
41.2 (2005-2006)
Target
45.3
Target-Setting Method
10 percent improvement
Numerator
Number of children aged 12 to 17 years with special health care needs, whose health care provider has discussed transition planning into adult care
Denominator
Number of children aged 12 to 17 years with special health care needs
Questions Used to Obtain the National Baseline Data

From the 2005-06 National Survey of Children with Special Health Care Needs (Section 6B. TRANSITION ISSUES):

[NUMERATOR:]

The next questions are about preparing for his/her health care needs as he/she becomes an adult.

Do any of his/her doctors or other health care providers treat only children?

  1. Yes
  2. No
  3. Don't know
  4. Refused

[If yes:]

Have they talked with you about having his/her eventually see doctors or other health care providers who treat adults?

  1. Yes
  2. No
  3. Don't know
  4. Refused

Have his/her doctors or other health care providers talked with you or him/her about his/her health care needs as he/she becomes an adult?

  1. Yes
  2. No
  3. Don't know
  4. Refused

Eligibility for health insurance often changes as children reach adulthood. Has anyone discussed with you how to obtain or keep some type of health insurance coverage as he/she becomes an adult?

  1. Yes
  2. No
  3. Don't know
  4. Refused

How often do his/her doctors or other health care providers encourage him/her to take responsibility for his/her health care needs, such as (taking medication, understanding his/her health, or following medical advice)? Would you say?

  1. NEVER
  2. SOMETIMES
  3. USUALLY
  4. ALWAYS
  5. DON'T KNOW
  6. REFUSED

[NUMERATOR AND DENOMINATOR:]

Does your child currently need or use medicine prescribed by a doctor (other than vitamins)?

  1. Yes
  2. No
  3. Don't know
  4. Refused

[If yes:]

Is this because of ANY medical, behavioral or other health condition?
  1. Yes
  2. No
  3. Don't know
  4. Refused

  • Is this a condition that has lasted or is expected to last for at least 12 months?
    1. Yes
    2. No
    3. Don't know
    4. Refused
  • Does your child need or use more medical care, metal health or educational services than is usual for most children of the same age?

    1. Yes
    2. No
    3. Don't know
    4. Refused

    [If yes:]

    Is this because of ANY medical, behavioral or other health condition?
    1. Yes
    2. No
    3. Don't know
    4. Refused

  • Is this a condition that has lasted or is expected to last for at least 12 months?
    1. Yes
    2. No
    3. Don't know
    4. Refused
  • Is your child limited or prevented in any way in his or her ability to do things most children of the same age can do?

    1. Yes
    2. No
    3. Don't know
    4. Refused

    [If yes:]

    Is this because of ANY medical, behavioral or other health condition?
    1. Yes
    2. No
    3. Don't know
    4. Refused

  • Is this a condition that has lasted or is expected to last for at least 12 months?
    1. Yes
    2. No
    3. Don't know
    4. Refused
  • Does your child need or get special therapy such as physical, occupational or speech therapy?

    1. Yes
    2. No
    3. Don't know
    4. Refused

    [If yes:]

    Is this because of ANY medical, behavioral or other health condition?
    1. Yes
    2. No
    3. Don't know
    4. Refused

  • Is this a condition that has lasted or is expected to last for at least 12 months?
    1. Yes
    2. No
    3. Don't know
    4. Refused
  • Does your child have any kind of emotional, developmental, or behavioral problem for which he or she gets treatment or counseling?

    1. Yes
    2. No
    3. Don't know
    4. Refused

    [If yes:]

    Is this a condition that has lasted or is expected to last for at least 12 months?
    1. Yes
    2. No
    3. Don't know
    4. Refused
    Data Collection Frequency
    Biennial
    Comparable Healthy People 2010 Objective
    Not applicable
    Methodology Notes

    Youth with special health xare needs are considered to have health care providers who have discussed transition planning into adult health care if they or an adult proxy respond “yes, always, usually or sometimes”, to any of the Numerator questions after the first (screening) question.

    Youth with special health care needs are identified using the questions shown in the Numerator and Denominator section. Youth are considered to have special health care needs if if they or an adult proxy respond “yes” to all parts of at least one screener question and and its subparts.

    References

    Additional resources about the objective.

    1. National survey of children with special Health Care needs [Internet]. Portland (OR): Child and Adolescent Health Measurement Initiative (CAHMI). c2010 – [cited 2010, Mar 10.]. Available from http://cshcndata.org/content