Universal Data Collection System
The Universal Data Collection System (UDC) collects data from people with hemophilia and other bleeding disorders of all ages to better understand issues across the lifespan. The data collected are used to find out how many people with bleeding disorders have complications and how severely they are affected, to study how different treatments affect patient health, to monitor the safety of blood products used to control bleeding, to assess quality of life, and to determine health issues that need more research.
http://www.cdc.gov/ncbddd/blooddisorders/udc and related web pages. Accessed September 6, 2010.