Description of the data source, numerator, denominator, survey questions, and other relevant details about the national estimate.
CDC's National Center for Birth Defects and Developmental Disabilities (NCBDDD) is collaborating with states in the National Birth Defects Prevention Network (NBDPN) to systematically collect population-based birth defects data on neural tube defects in a timely manner. Nine state birth defects surveillance programs that can collect anencephaly cases for all pregnancy outcomes were included in the dataset. Anencephaly cases are identified using either ICD-9 (741.0, 741.9) or CDC/BPA (741.00 – 741.99) codes.
Any change to the objective text, baseline, target, target-setting method or data source since the Healthy People 2020 launch.
In 2013, the words “live births and/or fetal deaths” were replaced with “cases” and the phrase “were diagnosed”' was removed from the data label to reflect the data collected in the surveillance instrument. Data for anencephaly from any pregnancy outcome were aggregated from multiple population-based surveillance systems across the U.S. Some of these cases might have resulted in a termination. Additionally, the cases were occurrences and may not have necessarily been diagnosed in the base line or target year.
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