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MICH-2 Data Details

MICH-2 Reduce the 1-year mortality rate for infants with Down syndrome

About the Data

Description of the data source, numerator, denominator, survey questions, and other relevant details about the national estimate.

National Data Source
National Birth Defects Prevention Network (NBDPN); Centers for Disease Control and Prevention, National Center for Birth Defects and Developmental Disabilities (CDC/NCBDDD)
Changed Since the Healthy People 2020 Launch
No
Measure
per 1,000 infants with Down syndrome 
Baseline (Year)
48.6 (2005-2006)
Target
43.7
Target-Setting Method
10 percent improvement
Numerator
Number of live born infants with a confirmed Down syndrome diagnosis who died in the first year of life
Denominator
Number of live born infants with a confirmed Down syndrome diagnosis
Comparable Healthy People 2010 Objective
Not applicable
Methodology Notes

Down syndrome includes cytogenetically confirmed full trisomy and translocation but excludes mosaic Down syndrome. Down syndrome diagnosis is obtained using either ICD-9 (confirmed 758.0, EXCLUDE mosaic Down syndrome) or CDC/BPA (758.000, 758.010, 758.020, 758.030, EXCLUDE 758.040 (mosaic Down syndrome), 758.090 (Down syndrome, NOS) codes. Fourteen state birth defects surveillance programs contributed data.